MPS Society

Charity Number: 1143472

Anna Thomas

0345 389 9901

MPS House, Repton Place, White Lion Road, Amersham, Bucks, HP7 9LP

The MPS Society supports anyone affected by MPS and related storage diseases across the UK with specialist advice and information. We carry out leading research so that new treatments and therapies are offered making life with a rare disease as pain free and easy as possible.

MPS and related diseases affects one baby every eight days and are genetic, metabolic diseases which cause progressive physical disability and in many cases severe neurological deterioration. Although there is treatment for some of the diseases, there is no cure and many of those affected will die in childhood.

We offer quality support for the whole family through our helpline, tailored advice, access to practical tools and we offer personalised emotional support if a child dies. Our vision is to transform the lives of those living with these rare diseases and to make an unbearable time more bearable.

We want all people affected by a rare, genetic disease to live the lives they want. A legacy donation will enable the MPS Society to be there for all those that need us by offering specialist knowledge from diagnosis, through life’s challenges and beyond. 

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