SUDEP Action

Charity Number: 1164250 (England), SC047223 (Scotland)

Cara Brandi

01235 772850

18 Newbury Street, Wantage, Oxfordshire, OX12 8DA

Founded in 1995 as Epilepsy Bereaved, today SUDEP Action is the only UK charity with specialist expertise in supporting and working alongside anyone bereaved by epilepsy.

The free support service is tailored – led by what the bereaved need and want. Services include, ongoing emotional support, counselling, advocacy, information, advice and involvement in research through The Epilepsy Deaths Register.

Around 21 people in the UK die each week from epilepsy, and nearly half of these are potentially avoidable with better risk awareness and access to services. Epilepsy deaths can be devastating and traumatic and can leave many unanswered questions.

SUDEP Action work to prevent epilepsy deaths and promote better awareness of epilepsy risks, information and services. Free award-winning safety tools and resources are provided to clinicians, people with epilepsy and their families. Including EpSMon, a free self-monitoring digital app for epilepsy patients, and the SUDEP & Seizure Safety Checklist, a clinical tool supporting epilepsy risk management and discussions. The charity also collaborates with UK and international research teams, focusing on finding the answers to help save lives.

A Legacy to SUDEP Action enables life-saving epilepsy-related research and supports those bereaved.

If you have been bereaved by epilepsy, contact or 01235 772852.

For more information on epilepsy safety, contact or 01235 772850.

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