A lifeline for Louise

I always come away feeling more confident in myself and feeling that things will be ok again.

Louise is 41 and a proud Mum to her daughter Millie. Louise has had epilepsy since she was 12 years old. Her condition makes life difficult, but charity Epilepsy Society has helped her to stay positive.  

Louise has many different seizure types and although her tonic clonic seizures can leave her cut and bruised, her greatest fear is wandering out into a busy road during a focal impaired awareness seizure. She often comes out of a seizure not knowing where she is.

Louise talks about the support she receives from Epilepsy Society’s Helpline, even if it is just having someone there to listen.

"Some nights I lie awake fearing the worst. What if I don't wake up in the morning? What if I have a seizure in the night and it is my last? What if I have a seizure during the day and it isn't the seizure that kills me but the fall when I smash my head on the ground?

"Being able to pick up the phone and call the Helpline is such a lifeline. It is so good to know someone is there who understands what I am going through and will just listen.

"Having epilepsy is about so much more than the seizures. It is about the side effects from the medication, the tiredness, anxiety and  depression; problems with cognition, learning speech and aphasia where I can't remember words or names or faces.

"Simple things can be so frustrating like when I want my partner to turn on the fire because I'm cold and I'm looking at the fireplace but can only think of the word 'fridge' or 'oven'. I have to work my way through the alphabet, trying to find the right word.

"I know I have family and friends who I can talk to, but sometimes you don't want to burden them. You don't know what troubles they're going through. Phoning the Helpline means I don't have to be embarrassed, because no-one knows me. It is just good to cry and let it all out.

"I always come away from the Helpline feeling more confident in myself and feeling that things will be ok again."

Light at the end of the tunnel

Epilepsy Society's confidential helpline is available for anyone affected by epilepsy.

Since April 2020, the charity has had more than 4,000 telephone or email conversations with people who felt they had nowhere else to turn. Epilepsy Society has been the light at the end of a very dark tunnel for people who are feeling frightened and alone.

Give a little love. Leave a lasting legacy

By leaving just 1% of your total worth in your Will to Epilepsy Society, you can help fund the charity’s essential work to support everyone affected by epilepsy. Your gift will enable Epilepsy Society to continue providing vital services like their Helpline and world leading medical research.

Find out more

To receive your legacy pack call us on 01494 601414 or email legacy@epilepsysociety.org.uk

Find out more about leaving a lasting legacy by visiting: www.epilepsysociety.org.uk/loveliveson

Related articles